Lewy Body Dementia Research Center of Excellence at University of Miami

Current Research Projects

The CCBH under the leadership of Dr. Galvin is actively engaged in clinical trials and observational studies related to Lewy Body Dementia, Alzheimer’s Disease, and other neurodegenerative conditions. Research and clinical care activities are conducted on site at our Boca Raton facility, which is equipped for collection and processing of blood and CSF for LBD biomarker and DNA analysis, cognitive testing, physical functional evaluation, and infusion with imaging studies referred to a University of Miami affiliate group. For a list of current CCBH projects click here (link to current project tab).

LBD Support Groups

DLBA Support Group

The DLBA support group is offered on the first Thursday the month at 12pm to care partners of patients that are diagnosed with Lewy Body Dementia. The meeting usually lasts 90-120 minutes in total. The group is facilitated by Iris Cohen, LCSW a social worker at the Comprehensive Center for Brain Health.

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The Mindful Caregiver Psycho-educational Support Group

This is a psycho-educational group offered to members of the larger DLBA support group.
This support group meets twice a month on the 2nd and 4th Thursday of the month at 12pm for one hour. This group is organized and led by Iris Cohen, LCSW a social worker at the Comprehensive Center for Brain Health.

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Lewy Body Dementia Resources

NIA Alzheimer’s and related Dementias Education and Referral (ADEAR) Center
800-438-4380 (toll-free; 8:30am to 5:00pm Eastern Time, Monday-Friday)

adear@nia.nih.gov

www.nia.nih.gov/alzheimers

The National Institute on Aging’s ADEAR Center provides up-to-date research-based information concerning Alzheimer’s disease and related dementias (ADRD) to health professionals, people with ADRD and their families, and the general public. Free publications about ADRD symptoms, diagnosis, treatment, caregiving, and information about current clinical trials are provided and staff is available to answer specific questions and refer to local supportive services and Research Centers specialized in research and diagnosis.

Lewy Body Dementia Association
404-935-6444
800-539-9767 (toll-free LBD Caregiver Link)

Lewy Body Dementia Resource Center
833-LBDLINE (toll free)

norma@lbdny.org

https://lewybodyresourcecenter.org

Family Caregiver Alliance
National Center on Caregiving

(415) 434-3388 | (800) 445-8106
Website: www.caregiver.org

Email: info@caregiver.org

FCA CareNav: https://fca.cacrc.org/login

Support our Lewy Body Dementia Research Center of Excellence

LBD is the second most common cause of dementia yet lags significantly in Federal research funding compared with Alzheimer’s disease, Vascular dementia, and other causes. You can help us reach our goals of developing better diagnostics and better treatments. Click here to learn how to help.